Cystic Fibrosis Canada
Cystic Fibrosis Canada
  • Видео 274
  • Просмотров 507 118
Préparez-vous à la Marche 2023!
La Marche Faites de la fibrose kystique de l’histoire ancienne aura lieu le dimanche 28 mai dans une ville près de chez vous. Inscrivez-vous, amassez des fonds et faites un don dès maintenant pour nous aider à aller #plusloinpourtous les Canadiens atteints de FK.
Просмотров: 74

Видео

Get Ready for Walk 2023!Get Ready for Walk 2023!
Get Ready for Walk 2023!
Просмотров 77Год назад
The 2023 Walk To Make Cystic Fibrosis History is coming to a location near you on Sunday, May 28. Register, fundraise and donate now to help us go #FurtherForAll Canadians living with CF.
Webinar: Mental Health and Cystic FibrosisWebinar: Mental Health and Cystic Fibrosis
Webinar: Mental Health and Cystic Fibrosis
Просмотров 259Год назад
On Tuesday, December 6 we held a webinar for Mental Health and Cystic Fibrosis. Experts discussed mental health from the perspectives of a social worker, person with CF and a caregiver. Watch to hear the discussion that took place.
The Miller Family - 2022 Year-End Campaign - ENG (60 sec)The Miller Family - 2022 Year-End Campaign - ENG (60 sec)
The Miller Family - 2022 Year-End Campaign - ENG (60 sec)
Просмотров 918Год назад
Donate today and help give hope for all people living with cystic fibrosis this holiday season: www.cysticfibrosis.ca/hopeforall
The Miller Family - 2022 Year-End Campaign - ENG (15 sec)The Miller Family - 2022 Year-End Campaign - ENG (15 sec)
The Miller Family - 2022 Year-End Campaign - ENG (15 sec)
Просмотров 54Год назад
Donate today and help give hope for all people living with cystic fibrosis this holiday season: www.cysticfibrosis.ca/hopeforall
The Miller Family - 2022 Year-End Campaign - FR (15 sec)The Miller Family - 2022 Year-End Campaign - FR (15 sec)
The Miller Family - 2022 Year-End Campaign - FR (15 sec)
Просмотров 55Год назад
Faites un don aujourd'hui et donnez de l'espoir à toutes les personnes atteintes de fibrose kystique pour les fêtes: www.fibrosekystique.ca/espoirpourtous
WEBINAR: NAVIGATING ISSUES WITH PRIVATE INSURANCEWEBINAR: NAVIGATING ISSUES WITH PRIVATE INSURANCE
WEBINAR: NAVIGATING ISSUES WITH PRIVATE INSURANCE
Просмотров 74Год назад
For information on how the OmbudService for Life and Health Insurance, a free, bilingual, independent and impartial alternative dispute resolution public service for Canadian life and health insurance consumers may help with your private insurance access issues, watch our webinar from Thursday, October 20, 2022.
Volunteer Impact WebinarVolunteer Impact Webinar
Volunteer Impact Webinar
Просмотров 75Год назад
Learn from Cystic Fibrosis Canada staff and researchers how volunteering for Charitable Gaming and other volunteering other projects can directly fund research and clinic incentive grants. Joined by Paul Eckford (CF Canada), Dr. Lisa Strug (SickKids), Jana Kocourek (CF Canada) and Erin Fleisher (London HSC)
CLA/CFC/CIHR: Grantsmanship Workshop for TraineesCLA/CFC/CIHR: Grantsmanship Workshop for Trainees
CLA/CFC/CIHR: Grantsmanship Workshop for Trainees
Просмотров 101Год назад
On September 16 we hosted a grantsmanship workshop in partnership with the Canadian Lung Association and CIHR to help new scientists learn effective skills for grant writing. We brought together an experienced panel of reviewers and early career investigators to advise attendees on: - How to craft a funding application - How reviewers rank submissions - Discuss upcoming funding opportunities to...
Ten-year-old Maysa's message to British Columbia Health Minister Adrian DixTen-year-old Maysa's message to British Columbia Health Minister Adrian Dix
Ten-year-old Maysa's message to British Columbia Health Minister Adrian Dix
Просмотров 164Год назад
British Columbia is the only jurisdiction that has not yet expanded access to the lifechanging CF drug Trikafta for 6-11 year olds. But #CFCantWait
Un message de Sasha Haughian, membre de L'escouade FKUn message de Sasha Haughian, membre de L'escouade FK
Un message de Sasha Haughian, membre de L'escouade FK
Просмотров 38Год назад
Sasha Haughian, mère de deux enfants et fondatrice de l’activité Fudge for A Cure, vous encourage à faire partie de L’escouade FK pour faire une différence dans la vie des Canadiens touchés par la fibrose kystique. Commencez votre collecte de fonds ici : bit.ly/3KnFQKp
A Message from Sasha Haughian, Change MakerA Message from Sasha Haughian, Change Maker
A Message from Sasha Haughian, Change Maker
Просмотров 52Год назад
Sasha Haughian, mother of two and founder of Fudge for A Cure, encourages you to become a Change Maker and help make a difference for Canadians impacted by cystic fibrosis. Start your own fundraiser here: bit.ly/36Y5fwG
Webinaire Demandez aux experts : l'exercice physique et la FKWebinaire Demandez aux experts : l'exercice physique et la FK
Webinaire Demandez aux experts : l'exercice physique et la FK
Просмотров 57Год назад
Vous avez des questions à propos de l'exercice physique et de la FK? Dans ce webinaire, nos panélistes, Dr Larry Lands, clinicien FK au CUSM et Jason Chartrand, entraineur personnel et atteint de FK, se font un plaisir d'y répondre. De plus, nos experts discutent de l'importance de bouger lorsqu'on vit avec la FK, vous recommandent des exercices faciles et amusants et vous donnent des conseils ...
Un message de Lorna, championne de la FKUn message de Lorna, championne de la FK
Un message de Lorna, championne de la FK
Просмотров 422 года назад
Un message spécial de Lorna, défenseure et championne de la FK, qui souhaite remercier tous nos donateurs pour leur générosité et leur soutien continu.

Комментарии

  • @RosyJAYLEE
    @RosyJAYLEE Месяц назад

    Cystic Fibrosis affects the cells that produce mucus, sweat, and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts, and passageways. Symptoms vary and can include cough, repeated lung infections, inability to gain weight, and fatty stools. *Dr Aboda*

  • @MaggieBurns-jo1wm
    @MaggieBurns-jo1wm Месяц назад

    God bless Tara!!!❤️🙏

  • @forevernight3279
    @forevernight3279 3 месяца назад

    I want to hug her

  • @Mr1011ck
    @Mr1011ck 4 месяца назад

    My grand daughter was just born with cf.

  • @stephenfermoyle4578
    @stephenfermoyle4578 4 месяца назад

    BRAVO a very very special Lady...and very elegant. Mrs.Mulroney is a shinning beacon of style, grace and determination for everyone. The children are well mannered well spoken and successful. merci and thank you Mila

  • @user-yd6sj3pe4j
    @user-yd6sj3pe4j 4 месяца назад

    Well Milan’s background is Serbian indeed we are part of commonwealth nations . My background is Ceylon Tamil In 2nd world war Irish nurse & indian doctors get married

  • @traceyneeb9290
    @traceyneeb9290 4 месяца назад

    Have always admired her. Sending heartfelt condolences.

  • @user-yd6sj3pe4j
    @user-yd6sj3pe4j 4 месяца назад

    NHL when I came to Canada I have no clue about ice hockey All my friends favorite team is Montreal Canadian I became Montreal Canadian fan . While I was living in Toronto I go to maple leaf hockey arena but I wear Montreal Canadian jersey

  • @clayirwinmusic1962
    @clayirwinmusic1962 5 месяцев назад

    rest in hell and sandy ranando

  • @stephenwinter8892
    @stephenwinter8892 5 месяцев назад

    Im a English speaking Canadian and French is known a frog's language Anglo-Saxon I hate this presentation thumbs down 👎

  • @fgfanta
    @fgfanta 6 месяцев назад

    I am thankful to her for telling her experience. I wish the cheesy background music wasn't so loud, it's hard to hear her.

  • @shaidulshake
    @shaidulshake 6 месяцев назад

    😂😂😂

  • @sosexy9701
    @sosexy9701 7 месяцев назад

    Praying for you ❤

  • @Atelierkariteetkafe
    @Atelierkariteetkafe 7 месяцев назад

    Très bien détaillé je le consulte tout le temps ❤❤❤❤❤❤❤

  • @limaaktar277
    @limaaktar277 7 месяцев назад

    Can i suggest grow your channel?

  • @limaaktar277
    @limaaktar277 7 месяцев назад

    Hi, Hope you are well. I hope visit your RUclips channel and your video making is very good. Your content ideas are very good. Thank you very much ♥

  • @LeeDee5
    @LeeDee5 8 месяцев назад

    She's still with us! I saw her X account is very active as I type this November 2023.

  • @zakiabaig2483
    @zakiabaig2483 8 месяцев назад

    You are the bravest woman ,I salute you

  • @annalouisegipulan5584
    @annalouisegipulan5584 8 месяцев назад

    thank you for sharing your video, it helps a lot especially for a mom like me who lost a son perhaps due to this disease. My son was only two days old when suddenly he had difficulty in breathing, at that time he was already screened but the newborn screen result had yet to be released. It was seven months later when I and my husband had been informed that my son had cystic fibrosis and that he needed to be tested for further confirmation but he already passed after 2 days of given birth. At the time of his passing, we were really confused why my son suddenly suffer from difficulty in breathing and he did not take his feeding. We rushed him to the hospital but five minutes after we were catered in the emergency care, he was not able to get through. It was the saddest part of our lives, just remembering those time brought so much agony for me and my husband. We were blaming each other thinking we havent done well or that much for our son. We did not know that he had CF until such time his newborn screen result was released. We didnt know what is CF, so I had to google it and that's how I come across your video. It is painful to lost my son, It has been 2 years and the pain still lingers. But your video helps me understand and somehow accept why my Ronan could not make it. I hope you will not lose hope of fighting to live, you are blessed because your are able to make it 23 years of life. How i wish my Ronan had able to survive with it because I will really do whatever it takes just to make my son live..

  • @Frozenfan-qr8qc
    @Frozenfan-qr8qc 8 месяцев назад

    Diagnosed In 1987

  • @roi1357
    @roi1357 9 месяцев назад

    Has anyone else noticed a decline in mental health from those that took the vaccine.

  • @TheOne-xu5oy
    @TheOne-xu5oy 10 месяцев назад

    I have CF and I can confirm through personal experience that there are a whole host of CF symptoms that were alleviated once a focused on my gut flora. I was already taking Trikafta and focusing on the things my doctor told me which made a huge difference. That difference was further improved when I began paying closer attention to my gut flora. Hope this helps other fellow patients.

  • @phamhung3998
    @phamhung3998 10 месяцев назад

    great video, thank you

  • @hadassahcornish2941
    @hadassahcornish2941 Год назад

    Please get checked for S. Aureus. Which causes abscesses/ pus which is dead white blood cells which are supposed to fight infection. if its ingested by inhaling or in contact with feces. My son swallowed meconium before he was born and had a lung infection and a hole in it and within a year had a blood infection. Heal your gut and please try colloidal silver because it penetrates mucous. Pus and mucous can be mistaken for just mucous. Plus their are other versions of the same thing just different levels of progression of the same problem.

  • @jitskid101
    @jitskid101 Год назад

    I’ll show support to your family

  • @AWayOfLiving84
    @AWayOfLiving84 Год назад

    🧚🏻‍♂️☯️🌹🌌🦅

  • @comegetme2162
    @comegetme2162 Год назад

    I'm a healthy lucky one🤗

  • @comegetme2162
    @comegetme2162 Год назад

    🧚🏻‍♂️☯️💒🗽🌎🦅🌌

  • @Tommyboytomsters
    @Tommyboytomsters Год назад

    Bless u

  • @Georgialeastoney
    @Georgialeastoney Год назад

    I have CF to and yes there is a lot about it, and just a couple of months ago I got a medication called “Trikafta“ and it truly changed my life. And it is scary, you don’t know ur future. Not knowing if u can go to college or have children if u don’t make it that far in life

  • @brucele2056
    @brucele2056 Год назад

    Is there anyway to contact her?

  • @jochen8753
    @jochen8753 Год назад

    :)!! Become a YT god > Promo-SM !!

  • @Condorcet2011
    @Condorcet2011 Год назад

    Trina you are so beautiful and inspiring!!

  • @terrymabery7009
    @terrymabery7009 Год назад

    Hello everyone and how can i personally recommend to you all Dr Ehimare herbal medicine on RUclips channel who cured me from fibrosis permanently with the use of his herbal medications cure treatment formula 💃💃

  • @mateuszwyszecki7828
    @mateuszwyszecki7828 Год назад

    video anda sangat bagus dan mempunyai mesej yang luas terima kasih

  • @lornarichmond5514
    @lornarichmond5514 Год назад

    Thank you for sharing and I’m hopeful that you are doing better with your new lungs

  • @2steaksandwiches665
    @2steaksandwiches665 Год назад

    I only have to deal with bronchiectasis and it’s not great. God bless all your people.

  • @jsmartguyferguson8038
    @jsmartguyferguson8038 Год назад

    hi Tara my name is Jon Ferguson I'm from Illinois I'm praying for you to get better my niece has cf she doing really well I'm going send you Alot of prays may God blessed you Jon Ferguson 💜💜💜❌❌🎈🎈🎈💗💓🌷🌹🌹

  • @sonia15702
    @sonia15702 Год назад

    Tara, I have signed on to save a life here in Australia. A card we hold In our wallet. I have decided to surrender all of my organs if I shall die unexpectedly. My family knows all my wishes as they have also discussed with me. I have had friends growing up with CF in the church. One close friend who lived five years post transplant, was a wonderful thing. Bless you.

  • @Synder619
    @Synder619 Год назад

    My fellow CFers: Can you move to California? I'm not kidding. I know that CA politics are messed up. However, it allowed me financial help for my extraordinarily expensive meds. I discovered GHPP, i.e., Genetically Handicapped Persons Program! It was like a gift from the Lord Jesus & I am so thankful to God!

  • @FrenchyCanuck
    @FrenchyCanuck Год назад

    A 6 ans elle va pouvoir en prendre.

  • @annjaeckel8338
    @annjaeckel8338 2 года назад

    I am so happy for you Lorna.

  • @mokkascience
    @mokkascience 2 года назад

    I am from India. I am 21 years old . Struggling with shortness of breath for more than one and half years. Still struggling. Sometimes I feel better, Sometimes I feel very bad , I am very tired, frequent fever and almost feeling fainted 😭 First diagnosed with Pneumonitis and then some ct's are taken. Some doctors tell scars(fibrotic bands) in the lungs but it's okay, You are alright. But my problems symptoms are same , not cured? I also had acid reflux and belch more than a year . I diagnosed with stomach ulcer. Some doctors didn't understand my pain. Still didn't got proper medication. Please help someone 😥, living with pain I hate the Nature which causes our lives so sad,

    • @akashkotali8449
      @akashkotali8449 7 месяцев назад

      How to contact you iam facing same problem

  • @abdullahalhosani551
    @abdullahalhosani551 2 года назад

    Tara dear it’s okay just enjoy your life no need to be worried 😟 I now it’s difficult I can do my best for you I can take you for nice doctor he can give you medicine for that and he can split that mucus which stuck in your chest dear that’s why you can’t breath well dear

  • @shaygiles3974
    @shaygiles3974 2 года назад

    How is this lovely lady now

  • @Sandy33569
    @Sandy33569 2 года назад

    It’s awful because even cost wise.. covering the medication would cost way less than all the hospital stays and potential lung transplant! Just WHY do this?!? And this is in Canada?? A lot of us Americans have been told plenty of times how healthcare is basically free/low cost compared to here. This video sounds like something out of the US! Goes to show you that Canada may not be so different than us? It sucks. It’s unethical..

  • @xiongvang9584
    @xiongvang9584 2 года назад

    How can I get approved?

  • @missylisa9539
    @missylisa9539 2 года назад

    Why cure you if they can just create the medicine that slowly treats you and keep making money off of your insurance, off of you.

  • @khuggies
    @khuggies 2 года назад

    Bless you, your family, and loved ones, thank you for sharing your story. I participated/volunteered in my first CF foundation great strides walk today, in West Virginia. I plan to get as involved as I can as time goes on. Last year I learned I was a carrier for CF, and no one in my family, paternal/maternal, was aware of being a carrier. I recently became a father of beautiful identical twin girls, both positive for CF. Born at 28 weeks 6 days. Strongest little girls. They have inspired me to do something greater with my time in this world. Very sadly, this past week I lost one of my girls at 68 days. Devestating. I am still figuring out how to come to terms with it. God has a plan for everyone, no matter how brief a life is, there is a purpose and change made in this world. Her sister is doing well as can be and I hope to take her home from the hospital very soon. She begins her enzymes this coming week. I am very blessed to have an emotionally supportive family surrounding me and we are getting through this tough time by coming together as one. May my sweet little girl rest in heaven and watch over her sister. Forever in my heart <3.

  • @NismoGojira
    @NismoGojira 2 года назад

    Thank you for sharing this ❤️